You know your body more than any one else!! I know it’s not wise advice to lie to your doctor, but when you’re certain about your body and your needs, sometimes it is best to fib so they take you and your needs seriously. Of course, only do this if you’re comfortable. If they question how you were tested, you can say endoscopy or antibody blood testing. If I were you, I would consider yourself celiac and tell a doctor you have celiac disease so they add it to your chart. It’s good for when you have an infection or emergency, but often fails when it comes to curing us of our illnesses. Because he saw changes he decided that was proof enough □♀️įrom what you wrote, I can guess you’re aware that western medicine often fails us. He didn’t do an antibody test on me! He re did blood tests for chemistry panels, vitamins, and cbc. So in a way, I’m not so formally diagnosed… but the doctor heard me and can see the difference from seeing me before I ate gluten and how I looked after. This doctor just looked at me, told me to stop eating gluten for the rest of my life, and he’ll add to my medical notes that I’m celiac. I explained my history and desire to be diagnosed, and that so many doctors have already dismissed me and my concerns about celiac. I went to see the doctor after that week and could barely walk in there myself. I had severe chills, aches and pains, serious brain fog, and became severely dehydrated from the diarrhea that wouldn’t stop. But let me tell you, I ate gluten for just a week and it was HORRIBLE! I felt like my body was literally turning off slowly and painfully. But I desperately felt the desire to be properly diagnosed, maybe because I felt it would rationalize all my years of struggling and being dismissed by my parents and other adults. Like you though, I was aware of how gluten affected my body and had already removed it from my diet. My health seemed to deteriorate as I got older as you shared and I learned that gluten was the major culprit when I heard about celiac disease. Many of us with celiac have had life long illnesses or years of issues before diagnosis. Yikes!!! I hope it doesn't hit you too hard. Blue Bell Dutch Chocolate contains Wheat Flour. (Blue bell is a regional band based in Texas.) I don't have info on other flavors, but watch your ingredients on blue bell ice cream, for sure. My husband feels very bad for buying that, but I told him that it is ultimately my responsibility to police what goes into my mouth. This is actually the first verifiable screw up I have had since I was diagnosed, and it is a vivid reminder that you always need to read every label, every time you put something in to your mouth. My husband brought home a pint of Blue bell dutch chocolate ice cream for me tonight, and as I was taking my first few bites I discovered Flour(wheat) near the end of the ingredients list. I know this is an old thread, but since it is the first thing that pops up on a google search, I feel obligated to add that this information has absolutely changed.
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